I'm so fortunate to live in Canada where health-care doesn't cost a million dollars. What's very annoying is waiting for funding. I've got to get AFO's, and no one really knew where to start so it's been a lot of running around trying to figure it out.
I got a consult at the orthopedic clinic to see if I meet physical criteria for funding, then have to wait two weeks to get a prescription from one of my specialists. After that, the orthopedic clinic has to fill out and send the paperwork and I will wait even longer. If I do get the funding, then it means waiting to get molds, and having them made into AFO's. Total wait time: 50 million years. However, it's a step in the right direction and I'll take it!
While I was calling the specialist to book my appointment the receptionist who happens to be a chiropractic student asked me my diagnosis. She was the very first person in the medical field to know exactly what EDS was! I was floored, but in a good way.
After Taiko last week I knew wearing the ankle braces was not an option. We have to either wear bare feet or socks in the studio and my braces slide on the floor. I hate wearing shoes so I was pretty happy about that. I ended up having to take off the braces because I had no traction. That meant my ankles were a stretchy mess and all over the place. This week, I have a new game plan. I resorted back to using Leuko-tape for the stability, and super-glued that stick-mat stuff I was talking about on the bottom of my feet. Hopefully it will provide stability and traction. If it doesn't work, I'll find a different way. Take that bendy ankles!!!
"Do not go where the path may lead, go instead where there is not path and leave a trail."