I've got 6 posts that are all on different topics, all half written.
This pretty much sums up the past couple weeks. It's another copy+paste post!
So after recovering from my stay at Chateau Sinai, and digging myself out of the pit of doom, my GI system has decided to wreak havoc again.
I'm back to refluxing anything that I eat or put through Jerome.The last two days have been a barf-fest as well. Extra-strength 24hr Gravol has nothin' on me.
I'm not exactly sure what to do other than to try and ride it out. I don't have the energy to go back and end up inpatient right now. The last visit ended up going okay, but it sucked the life out of me. I had to do a lot of fighting. Because of my wacky body, I've got to be hyper-vigilant because stupid mistakes happen all the time, and it can be really dangerous.
If the whole thing doesn't improve over the weekend I'll go back because really, I don't have a choice. I need fluids.
It would be awesome if I could get the fundo surgery right away...although odds of it happening are pretty slim. Chances might be better if I go to a different hospital (Toronto Western) where one of my referrals went to, but no one knows me there. I'm still waiting to hear back from everyone I got a referral for. Waiting sucks.
Otherwise everything else is good. I started using the Percocet so I'm taking 1-2 every 24hrs with Gravol. It's not what I wanted in terms of being able to avoid drugs, but my quality of life is so much better. I'll take it around 7pm, so I can enjoy some time being in less pain before I go to bed. It's so nice to go to sleep without my ribs and back hurting when I breathe, or feeling like I'm being gnawed on by some invisible jaws. I end up getting a really good sleep and waking up without difficulty. I've been able to have some of my life back and can do things like protest, spend the day outside with my friends and take the dog for 2hr walks through the ravine everyday.
Oh yeah, I've got foster-dog. His name is Jack and he's awesome. He will not leave my side when I'm feeling gross, and cleans up all the chip crumbs in my bed. He seems to get that things aren't quite right with me, and is really careful around Jerome along with my adaptive goodness.
After wrapping my head around the fact that I'm more sick than I'd like to believe, I've been meeting with social workers so I can get what I need. I shouldn't have to much trouble getting the new feeding pump, jerome 2.0's, adaptive goodness and accessible housing. Crossing my fingers!!!!
I've started learning Reiki, and practice everyday. Energy work is pretty awesome stuff, I can't wait to see what happens with it.
Here's to hoping my next e-mail won't be sent from the hospital, but on a day when I'm feeling like a million dollars. It could happen....
Dear: Jack Attack, thank you for keeping me company and cleaning up all my chip crumbs. You're more than welcome to lay in my bed all day. I have lots of those...
p.s. I'm glad you had a bath.
Not only does Jack Attack clean up my chip crumbs, he's fine with my didgeridoo and loves the
hammock. It's tough being Jack....
My name is Jack-Jack.
I like going for long walks in the ravine, cuddling, being Nakki's shadow, and fighting coons. Oh, and I really like big fluffy dogs. Nakki tells me to be a gentleman and stop humping them, but I just can't help myself.
Do your joints hang low, do they wobble to and fro, can you tie 'em in a knot, can you tie 'em in a bow? Can you hang them over your shoulders like a continental soldier, do you joints hang low?
What doesn't kill you....
7 months ago